Tuesday, February 23, 2016
36...37...38!
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Saturday, February 13, 2016
Heart Baby
My sister went to to a maternal fetal specialist and received some life shattering news. Her little boy was diagnosed with Hypoplastic Left Heart Syndrome, which means the left side of his heart has not developed the way it should, and if not treated within the first days of life, he will die. This will require 3 open heart surgeries to fix.
Now fast forward to January 1st, when they found out an entire new diagnosis. I'll share my sisters explanation;
"He has what is called, Severe Coarctation of the Aorta with aortic arch hypoplasia. So, his aorta is too narrow, which is a problem, because it is the main blood vessel carrying oxygen-rich blood from the left ventricle of the heart to all of the organs of the body. The doctor feels that once the aorta is fixed, the left side of his heart will be strengthened in time. There are also some other abnormalities. The mitral valve and aortic valve are mildly smaller than normal, but he can see that there is blood flowing through them that seems enough. There is also a small hole between the left ventricle and right ventricle in the lower ventricular septum of the heart. Dr. Cnota feels that the heart muscle will heal the hole on it's own."
Needless to say we all feel better even though it will still be a challenge and things will be rough with the unknowns. So today we had a baby shower for them since they have special needs and items that will help lighten their load when he arrives. I must say they were blessed beyond compare. I am grateful for everyone who pitched in from all over the country even if they could not be there.
I am so excited to meet this little guy to watch him thrive and grow and overcome all that he is given.
Myself, Grandma Beaver, Mom, Laura, and Amy (We missed you Heather) |
Such an overflow of love, and this doesn't include the stroller someone order for her! |
Most everyone who came to the baby shower. Some had to leave before we got a group picture. |
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Thursday, February 11, 2016
Valentine Flowers
(Please ignore the fact he is in his underwear, we're still working on potty training)
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Wednesday, February 10, 2016
Snow Helper
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Saturday, January 9, 2016
Till We Meet Again
Grandma Ethel was someone I could tell everything to and know she had my back or words of wisdom for me. She taught me to sew, and made many of my sisters and my clothes when we were little. The last thing she ever sewed I am grateful to have as it was part of my Halloween costume 2 years ago (she was 92 when she made it!). It went without say that I was her favorite granddaughter, and I don't say this to make anyone feel less loved or anything, but there was just a special bond between us. Words cannot begin to explain how full of love my heart is for this wonderful lady. She played a large role in making me who I am today. I am grateful to know that this life is not the end and even though I do not know or understand all, I know without a doubt I will see her again.
Here's what I wrote on my Facebook earlier this week. Some of it is repeated from what I have already shared, but I want to post this for myself so I can always remember my first thoughts and reaction. Ethel passed away on January 3, 2016.
One upside to Grandma Ethel passing is that my sister Heather came and spent some time with us. She flew into Indy and stayed and drove with us to the funeral. We live in Indiana and my grandma lived in Charleston, West Virginia which is about a 5 1/2 hour drive. Gavin enjoyed having her with us even if it was just for a few days, and so did I.
Lunch Break on the drive there Heather and Gavin |
Me and my love Clint |
My sisters and I saying our last goodbye until we meet her again Heather, Amy, Laura, and Me |
My dad Bill, and his step-brother Bill Grandma always laughed that she had 2 sons both named William, and they both went my Bill |
Brotherly love saying farewell to their loved mother |
Heather's initials and hand/foot prints on the front pouch from when they built it. She was only about 18 months old or so at the time. |
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Sunday, January 3, 2016
Jesus Wants Me For A Sunbeam
Looking good for Sunbeams! |
Helping with music time |
Sitting with his class (he's actually sitting still for once!) |
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